Although the issue of confidentiality and information sharing hasn't made it onto our Mental Health Wish List it has cropped up several times as a discussion point over the past few months. Rethink recently sent through some guidance on information sharing from the Department of Health. The report, 'Information Sharing and Mental Health', touches on some of the issues that we've discussed - that service users have a right to access information that impacts on them and that carers often feel that information is withheld from them unnecessarily. The guide is intended mostly for health professionals and is primarily focussed on sharing of information between statutory and non-statutory organisations. So, it doesn't directly address the issues we've been discussing as a group but does give a useful insight into the difficulties that professionals face. However, the guide does reference a report by Rethink for the Department of Health, published in 2004 , 'Positive and Inclusive: Effective ways for professionals to include carers in information sharing' which does look exclusively at information sharing with carers. It's a pretty long report (over 200 pages) but it is summarised - p.9 lists the main results and p.11 the main recommendations.
As readers of this blog may know, Manchester Mental Health and Social Care Trust is in the process of relocating psychiatric inpatient services from Edale House at the Central Manchester Hospital (MRI) site to Park House at North Manchester General Hospital. We've always been concerned about the impact that this move will have on carers and service users in terms of increased transport times. A representative from the Trust came to our meeting last month to update us on plans for transport and the Trust's latest newsletter contains the following update on the service user and carer transport sub-group: "The group last met on 6 February and it was decided that another visitor questionnaire should be undertaken to make sure that we make the right decisions about transport. It was also agreed that more engagement and communication with service users is necessary and the service users and carers who attend the meetings will support this....
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